European Reference Network (ERN) information video featuring Cormac McCarthy and Liam Galvin | Health Service Executive
European Reference Network (ERN) information video featuring Cormac McCarthy and Liam Galvin | Health Service Executive
242.2K views3 months ago
linkedin.com
European Collaboration for Rare Disease Care and Quality of Life | ERN-EuroBloodNet (European Reference Network on Rare Hematological Diseases) posted on the topic | LinkedIn
European Collaboration for Rare Disease Care and Quality of Life | ERN-EuroBloodNet (European Reference Network on Rare Hematological Diseases) posted on the topic | LinkedIn
2.2K views2 months ago
linkedin.com
European Reference Networks Explained: Why ERNs Matter for Rare Diseases
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European Reference Networks Explained: Why ERNs Matter for Rare Diseases
1 views1 month ago
YouTubeERDERA
Rare diseases: How the European Reference Networks support Health Professionals
7:06
Rare diseases: How the European Reference Networks support Health Professionals
222 viewsJun 26, 2020
YouTubeERN eUROGEN
Patient Partnership Framework for the European Reference Networks (ERNs)
2:43
Patient Partnership Framework for the European Reference Networks (ERNs)
15 views5 months ago
YouTubeeurordis
ERN Animation clip for patients and health professionals (english subtitles)
3:01
ERN Animation clip for patients and health professionals (english subtitles)
1.5K viewsApr 4, 2019
YouTubeERN ReCONNET
European Patient Advocacy Groups (ePAGs)
European Patient Advocacy Groups (ePAGs)
Aug 5, 2022
eurordis.org
6:00
Réseaux Européens de Référence : 5 questions au Dr Fernand Pauly
472 viewsFeb 25, 2022
YouTubeCHL Luxembourg
COVID-19 Lessons learned: WHO/Europe launches the first Pan-European Network for Disease Control
Apr 22, 2024
World Health Organization
0:05
We are excited to announce the winners of the 2025 Patient Partnership Good Practice Challenge! 🎉 This initiative aims to foster peer learning on patient partnership in the European Reference Networks (ERNs) by showcasing outstanding examples of collaboration between patient representatives and healthcare professionals involved the Networks. After the evaluation by a Selection Committee, three practices have won the challenge: 💡 ERN-LUNG - European Reference Network for rare respiratory diseas
128 viewsMar 2, 2025
FacebookEURORDIS-Rare Diseases Europe
0:22
🎧 A new episode of ERNs on Air is now live! Join Ines Hernando from the EURORDIS ERNs & Healthcare team in conversation with Olivia Spivack, researcher and ERN Implementation Coordinator at ERN ERNICA, and Mirthe Klein Haneveld, researcher and member of the ERN ITHACA guideline working group. Together, they dive into the Patient Partnership Framework for the European Reference Networks (ERNs) – exploring why it was created, how it works in practice, and what it takes to build genuine collaborat
194 views6 months ago
FacebookEURORDIS-Rare Diseases Europe
5:08
European reference networks (ERNs) and patient involvement
1 views1 month ago
YouTubeRareBeacon
19:11
ERNs on Air: JARDIN - The Joint Action integrating ERNs into national health systems
36 viewsDec 5, 2024
YouTubeeurordis
10:24
CPMS Getting Started
480 viewsApr 19, 2018
YouTubeEpiCARE ERN
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European Reference Network (ERN) information video featuring Cormac McCarthy and Liam Galvin
14 views2 weeks ago
YouTubeHSE Internal Communications
1:32:16
Patient Partnership Webinar - Unlocking ERN Potential: Disease Specific Measures
70 viewsJul 25, 2024
YouTubeeurordis
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10 Minutes With Rhiannon Walls: The European Reference Networks
160 viewsDec 11, 2024
YouTubeeurordis
3:01
Introducing European Reference Networks
65 viewsFeb 22, 2023
YouTubeEndo-ERN
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The force & potential of multilingual reference data and semantic technologies? We discussed this at #ENDORSE2023, the European Data Conference on Reference Data and Semantics. Discover more in the proceedings of the conference #JustPublished! Discover too all the recorded sessions! https://europa.eu/!hcwW3h #KnowledgeManagement #ReferenceData | EU Law and Publications
131 viewsSep 19, 2023
FacebookEU Law and Publications
PhEur Reference Standards | Pharmaceutical Technology
Oct 1, 2013
pharmtech.com
43:30
ERN-EuroBloodNet Thursdays Webinars - Diagnosis and Clinical management of rare forms of...
160 viewsDec 27, 2024
YouTubeERN-EuroBloodNet's EDU
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Europe's Critical Undersea Infrastructure Explained
6 months ago
TikToktheeuropeancorrespondent
Lasting university networks for Europe
Jul 21, 2020
deutschland.de
57:40
Webinar: ERTC symposium European Reference Networks
123 viewsSep 21, 2017
YouTubeeurordis
EU Reference Laboratory for alternatives to animal testing (EURL ECVAM)
Mar 30, 2025
europa.eu
Celebrating 25 Years of the European Social Network | European Social Network
6.8K views3 months ago
linkedin.com
1:44
PT Mensagem Rede Europeia de Referência ReCONNET
34 views2 months ago
YouTubeERN ReCONNET
3:27
Welcome Package for European Patient Advocacy Group advocates in the European Reference Networks
17 views7 months ago
YouTubeeurordis
53:59
Webinar "Genomic analysis quick and easy: RD-Connect Genome-Phenome Analysis Platform"
464 viewsSep 20, 2018
YouTubeRD -Connect
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4 Polycysteuze leverziekte Wat zijn veel voorkomende symptomen
3.7K viewsJul 2, 2020
YouTubeNederlandse Leverpatiënten Vereniging
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